Epilepsy: Management in School and Sports

Epilepsy can be a challenge for school-aged children, but by partnering with teachers, coaches and caregivers, successful management is entirely... Read full post »

Epilepsy Surgery – Who Can Benefit?

What is epilepsy? Epilepsy means an elevated risk of recurrent unprovoked seizures.  A seizure is caused by an abnormally high... Read full post »

Duchenne Muscular Dystrophy Advancements: Research in the Pipeline

Duchenne muscular dystrophy is a genetically inherited, terminal disease of the muscles that steals boys’ lives typically by their third... Read full post »

What is Duchenne Muscular Dystrophy?

Duchenne muscular dystrophy is a disease that affects mostly boys, causes progressive muscle weakness and gradually steals boys’ ability to... Read full post »

Microcephaly: Definition and Treatment Options

The Zika Virus has garnered a lot of attention recently due to concerns for pregnant mothers who contract the virus... Read full post »
Is Medical Marijuana Right For Kids With Chronic Illness?

Is Medical Marijuana Right for Kids With Chronic Illness?

There has been a lot of talk in the media discussing legalization of marijuana and what it could mean for... Read full post »
Tenley Johnson

SMA Clinical Trial Provides Hope for Families

Tragically, most children with Type I Spinal Muscular Atrophy (SMA1) don’t live past their 2nd birthday. I believe the answer... Read full post »

When a Seizure Isn’t Epilepsy

When a child falls down and starts jerking their body, most people assume that the child is having an epileptic... Read full post »