An Update on Some of our Patients
As promised we’re continuing our behind the scenes updates on many of the special Children from the Every Gift Matters Holiday Campaign. This week I wanted to update you on Beau and Brett.
Beau has become a familiar face to so many of you and I’m happy to report his on-going cancer treatment is going really well. He continues to take daily chemotherapy medicines at home and returns to the hospital monthly for IV chemo and quarterly for chemotherapy in his spine. His treatment will continue for another 18 months to ensure his cancer does not return. Beau tolerates everything with the bravery he’s shown throughout this process. Beau is excited to spend Christmas at home this year (after spending his Christmas Day hospitalized at Children’s last year). He has already visited with Santa to share his wish list and the “Elf on the Shelf” has arrived this year to remind Beau and his sister the importance of “nice versus naughty.” In fact, Beau’s dad has created a Caring Bridge page where you can stay connected on Beau’s progress but also read some candid insights from a family helping their child cope with the “cancer bullies.” Thank you to Beau’s family for sharing their lives and their journey with us.
Brett has been a true miracle and it’s been a joy to stay in touch with him and his amazing family this year. Brett continues to live life to its fullest with Spinal Muscular Atrophy (SMA) Type 1, a condition that has no cure. His family is always by his side and they help Brett make the most of every day while championing for SMA research. Today we were at the hospital together and Brett got to meet Rickie Stenhouse, Jr, winner of the NASCAR 2012 Nationwide Series Championship. The NASCAR team was here to tour the hospital and help us tape a promotional message with Nationwide Insurance for our upcoming benefit race this summer at Mid-Ohio Raceway. Although he can’t speak without the help of a special voicebox, Brett is as smart and bright as any six-year old. He had questions for Rickie and even a Christmas joke: Q: What is worse than Rudolph’s Red Rose? A: Frosty the Snowman with a fever. Brett makes the most of every day and the love and support of his family is a big reason why…especially the love from his brother, Ethan, and sister, Paige. This special video takes you inside their special story.
Hunter – Last week we updated you on Hunter Miller, the tiny hero from our Every Gift Matters Holiday Giving Campaign. We were happy to report that Hunter will be spending Christmas home after spending more than 400 days in our Neonatal Intensive Care Unit. You can follow along with Hunter’s progress on his mother’s wonderful Facebook page, Hunter’s Heros (there’s that reason you’ve been looking for to get on Facebook).
Be sure to watch us on 10-TV tomorrow. Thanks to our friends at 10-TV for hosting a “Day of Giving” to benefit the hospital. We’ll be at the station all day to take your calls and pledges. Our patients will be dropping by and I’ll be manning the late shift from 9 – 11:30 so give me a call!